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Fetal Alcohol Syndrome

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Fetal Alcohol Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • Alcohol-Related Birth Defects
  • Alcoholic Embryopathy
  • FAS
  • Alcohol, Fetal Effects of

Disorder Subdivisions

  • None

General Discussion

Fetal alcohol syndrome (FAS) is a characteristic pattern of mental and physical birth defects that results due to maternal use of alcohol during pregnancy. The range and severity of associated abnormalities may vary greatly from case to case. However, characteristic features may include growth delays before and after birth (prenatal and postnatal growth retardation); malformations of the skull and facial (craniofacial) region; brain abnormalities; and/or additional physical findings. FAS may also be associated with varying degrees of mental retardation, learning abnormalities, and/or behavioral problems that, in some cases, may occur in the absence of obvious physical abnormalities.

Resources

National Organization on Fetal Alcohol Syndrome
1200 Eton Court, NW
Third Floor
Washington, D.C. 20007
Tel: (202)785-4585
Fax: (202)466-6456
Tel: (800)666-6327
Email: information@nofas.org
Internet: http://www.nofas.org

The Arc
1660 L Street, NW, Suite 301
Washington, DC 20036
Tel: (202)534-3700
Fax: (202)534-3731
Tel: (800)433-5255
TDD: (817)277-0553
Email: info@thearc.org
Internet: http://www.thearc.org

Wisconsin Treatment Outreach Project
Univ of WI School of Medicine & Public Health
Dept of Family Medicine,
1100 Delaplaine Court
Madison, WI 53715
Tel: (608)261-1419
Fax: (608)263-5813
Tel: (800)462-5254
Email: WTOP@fammed.wisc.edu
Internet: http://pregnancyandalcohol.org/index.asp?menuID=137&firstlevelmenuID=141

National Mental Health Consumers' Self-Help Clearinghouse
1211 Chestnut Street
Suite 1207
Philadelphia, PA 19107-6312
USA
Tel: (215)751-1810
Fax: (215)636-6312
Tel: (800)553-4539
Email: info@mhselfhelp.org
Internet: http://www.mhselfhelp.org

Mental Health America
2000 N. Beauregard Street, 6th Floor
Alexandria, VA 22314-2971
USA
Tel: (703)684-7722
Fax: (703)684-5968
Tel: (800)969-6642
TDD: (800)433-5959
Email: infoctr@mentalhealthamerica.net
Internet: http://www.mentalhealthamerica.net/

National Alliance for the Mentally Ill
3803 N. Fairfax Drive
Suite 100
Arlington, VA 22203-
Tel: (703)524-7600
Fax: (703)524-9094
Tel: (800)999-6264
TDD: (703)516-7227
Email: membership@nami.org
Internet: http://www.nami.org

Center for Disease Control and Prevention
1600 Clifton Road NE
Atlanta, GA 30333
Tel: (404)639-3534
Tel: (800)232-4636
TDD: (888)232-6348
Email: cdcinfo@cdc.gov
Internet: http://www.cdc.gov/

NIH/Institute on Alcohol Abuse and Alcoholism
5635 Fishers Lane
MSC 9304
Bethesda, MD 20892-9304
Tel: (301)443-3860
Fax: (301)443-7043
Email: niaaaweb-r@exchange.nih.gov
Internet: http://www.niaaa.nih.gov/

NIH/National Institute of Mental Health
Health Science Writing, Press, and Dissemination Branch
6001 Executive Boulevard
Room 8184, MSC 9663
Bethesda, MD 20892-9663
Tel: (301)443-4513
Fax: (301)443-4279
Tel: (866)615-6464
TDD: (301)443-8431
Email: nimhinfo@nih.gov
Internet: http://www.nimh.nih.gov/index.shtml

MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
USA
Tel: (920)336-5333
Fax: (920)339-0995
Tel: (877)336-5333
Email: mums@netnet.net
Internet: http://www.netnet.net/mums/

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: getinfo@madisonsfoundation.org
Internet: http://www.madisonsfoundation.org

Perkins School for the Blind
175 North Beacon Street
Watertown, MA 02472
Tel: (617)924-3434
Fax: (617)926-2027
Email: Info@Perkins.org
Internet: http://www.Perkins.org

National Consortium on Deaf-Blindness
The Teaching Research Institute
345 N. Monmouth Avenue
Monmouth, OR 97361
Tel: (800)438-9376
Fax: (503)838-8150
Tel: (800)438-9376
TDD: (800)854-7013
Email: info@nationaldb.org
Internet: http://www.nationaldb.org

Medical Home Portal
Dept. of Pediatrics
University of Utah
P.O. Box 581289
Salt Lake City, UT 84158
Tel: (801)587-9978
Fax: (801)581-3899
Email: mindy.tueller@utah.edu
Internet: http://www.medicalhomeportal.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  5/11/2009
Copyright  1987, 1989, 1997, 1998, 1999, 2000, 2002, 2003, 2007, 2009 National Organization for Rare Disorders, Inc.

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