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Epilepsy / Convulsive Disorders

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Epilepsy Foundation

(BILINGUAL) National. 49 affiliates. Founded 1967. Information and support for people with epilepsy, their families and friends. Publishes 'Epilepsy USA' magazine and a wide range of informational materials for people of all ages. Referrals to local affiliates (many of which have employment-related programs).
Write:
Epilepsy Foundation
8301 Professional Place East
Landover, MD 20785
Voice: 301-459-3700; Professional Library: 1-800-332-1000; Spanish Speakers Only: 1-866-748-8008
Fax: 301-577-2684
Website: http://www.epilepsyfoundation.org
E-mail: info@efa.org
Verified: 7/11/2012

Pyridoxine Dependent Kids

Online. 190+ members. Founded 1998. Support group for parents of children with pyridoxine dependency or parents who are using B6 as an anticonvulsant. Offers public and subscribers only message boards.
Website: http://groups.yahoo.com/group/b6children
E-mail: b6children-owner@yahoogroups.com
Verified: 8/2/2012

Charlie Foundation To Help Cure Pediatric Epilepsy

Online. 250 members. Goal is to network and support families using the ketogenic diet to help control their child's epilepsy.
Website: http://groups.yahoo.com/group/b6children
Verified: 6/29/2012

Ketogenic Diet Support Group

Online. Founded 2000. 34 members. Provides support for parents, family members, and caregivers who are using the Ketogenic Diet as a means of control for epilepsy or seizure disorders.
Website: http://health.groups.yahoo.com/group/ketogenic
E-mail: ketogenic-owner@yahoogroups.com
Verified: 8/16/2012

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