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Celiac Sprue

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Celiac Disease Foundation

National. Founded 1990. Creates awareness and provides services and support for patients, their families, medical and healthcare professionals seeking information about celiac disease/dermatitis herpetiformis and the gluten-free diet. Free information packets. Annual membership $40. Handbook 'Guidelines For a Gluten-Free Lifestyle' is included with annual membership or sold separately for $12. Members receive a quarterly newsletter and update notices of upcoming events. Brochure and quick start diet guide available.
Write:
Celiac Disease Foundation
20350 Ventura Blvd., Suite 240
Woodland Hills, CA 91364
Voice: 818-716-1513
Fax: 818-267-5577
Website: http://www.celiac.org
E-mail: cdf@celiac.org
Verified: 9/13/2013

Celiac Disease Online Support Group

Online. A community of people whose lives are affected by celiac disease and gluten intolerance. Family and friends welcome. Meets Mon. 9-10pm EST (Scheduled Moderated Chat) and Wed. 8-10pm EST (Unmoderated Chat). Wait in chat room for others to arrive.
Website: http://forums.delphiforums.com/celiac/start
Verified: 7/26/2013

Celiac Sprue Association/United States of America, Inc.

National. 150+ local CSA chapters and Resource Units. Founded 1969. Provides educational materials on celiac sprue, dermatitis herpetiformis and basics for the gluten free diet for patients, parents of children with celiac sprue and professionals. Children's camp during August in Rhode Island. CelKids network. Provides opportunities for support groups and networking with patients and professionals. Quarterly newsletter for members. Group development guidelines.
Write:
Celiac Sprue Association / USA
P.O. Box 31700
Omaha, NE 68131-0700
Voice: 1-877-272-4272
Fax: 402-643-4108
Website: http://www.csaceliacs.org
E-mail: celiacs@csaceliacs.org
Verified: 8/13/2013

Gluten Intolerance Group of North America

National network. 75+ affiliated groups. Founded 1974. Provides support to persons with gluten intolerance, celiac disease, dermatitis herpetiformis, and other gluten sensitivities, through consumer and industry services and programs that positively promote healthy lives. Offers email support, news magazine ($35), information and referral, conferences, guidance to those starting groups, and group development guidelines. Registered Dietitians are on-staff and available for telephone calls during business hours.
Write:
Gluten Intolerance Group
31214 124th Ave SE
Auburn, WA 98092
Voice: 253-833-6655
Fax: 253-833-6675
Website: http://www.gluten.net
E-mail: customerservice@gluten.net
Verified: 7/17/2013

American Celiac Society/Dietary Support Coalition

National. 78 affiliated chapters. Founded 1976. Mutual support and information for celiac-sprue patients, families and health care professionals. Buddy system, visitation, phone help system, newsletter and participation in educational efforts. Also supports dermatitis herpetiformis, Crohn's disease, lactose intolerance and other food allergies.
Write:
American Celiac Society
P.O. Box 23455
New Orleans, LA 70183
Voice: 504-737-3293
Website: http://www.americanceliacsociety.org
E-mail: americanceliacsociety@yahoo.com
Verified: 9/13/2013

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