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Mental Retardation / Down Syndrome

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

The Arc

National. Over 700 chapters. Founded 1950. Provides support for people with intellectual and developmental disabilities and their families. Advocacy groups and direct services. Monthly e-newsletter. Chapter development guidelines. Local group information on website.
Write:
The Arc
1825 K Street NW, Ste 1200
Washington, DC 20006
Voice: 202-534-3700
Fax: 202-534-3731
Website: http://www.thearc.org
E-mail: info@thearc.org
Verified: 9/12/2013

People First

Model. 30 groups in Washington. 7 high school clubs. Founded 1977. Self-help advocacy organization created by and for people with developmental disabilities. Provides help in starting new chapters. Monthly e-newsletter called Chapter Chatter.
Write:
People First of Washington
P.O. Box 648
Clarkston, WA 99403-2079
Voice: 509-758-1123
Fax: 509-758-1289
Website: http://www.peoplefirstofwashington.org
E-mail: pfow@clarkston.com
Verified: 2/7/2013

Down Syndrome and Autistic Spectrum Disorder

Online. 1400+ members. Founded 1997. Opportunity for families and professionals to discuss the unique aspects of supporting a person who is dually diagnosed with Down syndrome autism spectrum disorder.
Website: http://groups.yahoo.com/group/ds-autism
E-mail: ds-autism-owner@yahoogroups.com
Verified: 9/12/2013

Regard Online

Online. Founded 1989. A UK-based organization of LGBT people who self-identify as disabled. Follows the social model of disability. Offers information, advice (on a non-professional basis) and social contact for members through online groups. Provides advocacy and campaigns on issues affecting disabled LBGT people. Provides online newsletters, news and notices.
Write:
BM Regard
London, UK WC1N 3XX
Website: http://www.regard.org.uk or http://facebook.com/#!/group.php?gid=131451632773 and http://uk.groups.yahoo.com/group/regardonline
E-mail: secretary@regard.org.uk
Verified: 7/16/2013

Dads Appreciating Down Syndrome (D.A.D.S.)

International. 61 chapters. Assists and supports, through fellowship and action, the fathers and families of individuals with Down syndrome. Education, guest speakers and any other issues that affect children's lives. Share stories and experiences that are unique to fathers of children's lives. Assists those fathers interesting in joining with others to start a new chapter in any unserved areas.
Write:
D.A.D.S.
PO Box 3556
Carmel, IN 46082
Website: http://www.dadsnational.org/chapters
E-mail: joemeares@dadsnational.org
Verified: 9/12/2013

The Rainbow Support Group (RSG)

Model. 3 groups (throughout New England). Support group for gay, lesbian, bisexual and transgender people with developmental disabilities.
Voice: 203-387-2252 (New Haven Pride Center Main Number)
Website: https://sites.google.com/site/rainbowdisability/home
E-mail: rainbowsupport-owner@yahoogroups.com or RainbowDisability@gmail.com Listserv: rainbowsupport-subscribe@yahoogroups.com
Verified: 9/12/2013

National Down Syndrome Congress

National. Founded in 1973. * Support for individuals with Down syndrome, their families and the professionals who work with them. Provides information, advocacy and support concerning all aspects of life for individuals with Down Syndrome.
Write:
National Down Syndrome Congress
30 Mansell Court, Suite 108
Roswell, GA 30076
Voice: 1-800-232-6372
Fax: 770-604-9898
Website: http://ndsccenter.org
E-mail: info@ndsccenter.org
Verified: 9/13/2013

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